So it's almost winter and here in Melbourne we've had really mild weather the past month, with around 13 days in a row over 20 degrees Celsius. Helps save on the gas heater bill i guess, but yet another sign of climate change in action. I felt sorry for the people in the Balkans I saw on the telly in Europe who were flooded; 3 months rain in 3 days or something ridiculous.
Weather extremes, it seems, are here to stay.
My life has been pretty pedestrian of late; since September my sleep apnea has really ramped up; so much so that a typical day since then has been thus;
7am: Up and have a coffee and a fag
7.30am: Lie down on the couch for a kip
8.30: Breakfast, brief look at emails etc, take meds
9am: 2nd coffee and fag
9:15: Morning nap
11am: Maybe shower, maybe not
12noon: Lunch
12:30: Afternoon Kip
2.30-3pm: Afternoon coffees and fags
4pm: Late arvo kip
5pm: Chat to Mum on the phone
6pm: Watch the news on telly
7pm: Prepare/Eat Dinner (sometimes this is done prior to 5pm if hungry)
7.30: Telly watch
9pm: Lie on couch while listen to telly; eyes too tired to watch
11pm: In bed (hopefully) with c-pap mask on (which is being bloody useless anyway).
I discussed this routine with my psychologist and she noted that a 90 year old in a nursing home has virtually more vertical activity than do I at present. This stuck with me; we were discussing my reluctance to use my c-pap mask as I don't like how it feels on my face.
"Imagine how much you don't like missing out on life and sleeping your day away instead" said the psychologist. So that put a grenade under me and for the past week I have used the blessed mask EVERY night without fail for over 8 hours with no leaks and an average AHI (apnea hourly index; ie; the number of times per hour I stop breathing) of below 10, which is good. Without the mask it is around 35 times and hour.
So why do I still feel like crap???
One possibility: I have been going to bed very late (midnight-ish).
Second possibility: The pressure on my machine is too low.
I know it may seem obvious: go back to the clinic where you did the study and have your doctor assess your situation. Hmmmm.... I have a problem because;
- the doctor I saw is no longer at the clinic
- the doctor I saw was unethical and "farmed out" his appointments to trainees; I only ever saw him once.
With this problem at hand I requested all my paperwork from the clinic and went to see a new Sleep Clinician. He had an unfortunate manner and was quite arrogant, claiming it was not his job to assist me and that furthermore 85% of people complied with wearing masks, inferring some sort of delinquency upon my behalf. He referred me to a sleep technician who was quick to disregard the 3 masks I already had and equally quick to sell me a newer one, which, admittedly, has been the best fit so far. However nobody knows the "right" pressure I should be on; a legacy of the former dysfunctional clinic.
Taking matters into my own hands, I googled "Resmed Elite Settings Change" or somesuch; and discovered how to re-set the machine yourself. There's some slight danger of being over-oxygenated, but not if you adjust minorly and know what signs to look for.
So I'll play doctor for now and see how I go. If all else fails I go back to the second doctor and have another complete sleep study done. Ack.
But it is necessary. I can't write my life off being less active than a 90 year old. Fucking sucks, that does!
No comments:
Post a Comment